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- 您请求的操作仅限于组中的用户:关于帕金森病的信息可以在以下网站上找到:[http://www.pdf.org/en/parkinson_statistics USA] [http://www.parkinsons.org.uk/content/facts-journalists) UK] [http://www.epda.eu.com/en/parkinsons/in-depth/ Europe]
=== =欧洲帕金森病协会=== [http://www.epda.eu.com/en欧洲帕金森病协会](EPDA)是欧洲帕金森病的伞状组织。他们代表[http://www.epda.eu.com/en/about-the-epda/our-members/] 45个成员组织,为120多万帕金森患者及其家人的权利和需求辩护。EPDA的愿景是使欧洲所有帕金森患者能够过上充实的生活,同时支持治疗方法的研究。该组织于2011年11月在欧洲议会发布了[http://www.epda.eu.com/en/resources/parkinsons-consensus-statement/欧洲帕金森病护理标准共识声明]。该文件定义了帕金森病的最佳管理应该是什么,以及高质量的护理应该包括什么。这份文件不仅是由帕金森氏症领域的专家编写的,还包括帕金森氏症患者的声音。除此之外,他们还制作了一些令人惊叹的资源,向人们介绍这种疾病。{| width="400" cellspacing="1" cellpadding="1" border="0" align="center" |- | {{#ev:youtube|pqeZDFnpLpg|350}}EPDA。帕金森氏症-概述-第1页。可从:http://www.youtube.com/watch?v=pqeZDFnpLpg[最后访问29/09/16] |} === Parkinson's UK === [http://www.parkinsons.org.uk Parkinson's UK网站]提供大量关于帕金森病和病情管理的信息。 Local support groups are also available through Parkinson's UK and are an excellent resource available to persons with Parkinson's and Parkinsonism. Often exercise groups are also provided through these groups. === Move4Parkinson's === [http://www.move4parkinsons.com Move4Parkinson’s] was set up by Margaret Mullarney who was diagnosed with Parkinson’s in 2004. The site is dedicated to educating, empowering and inspiring People with Parkinson’s and their families or carers (Parkinson’s communities) to gain the knowledge and skills they need to improve their Quality of Life. Margaret recommends the Five Elements Framework based on her personal experience: [[Image:PP PD Image.png|border|center|1500px]] === National Institute of Neurological Disorders and Stroke === The [https://www.ninds.nih.gov/Disorders/All-Disorders/Parkinsons-Disease-Information-Page National Institute of Neurological Disorders and Stroke] (NINDS) provides a list of American based organizations: === Viartis === [http://viartis.net/parkinsons.disease/ Viartis] is an independent, non-commercial, and self-funded medical researcher specializing in Parkinson's. Viartis is not part of any other company, university or organization, and have no religious or political allegiances. They choose articles solely on the basis of their medical significance or potential interest, and you can register to receive information free of charge. The site provides links to a range of [http://viartis.net/parkinsons.disease/organisations.htm international] organizations.
=== Parkinson's Conference, 2009 === In September 2009, [http://spring.parkinsons.org.uk/ SPRING] (the research interest group of the Parkinson’s Disease Society) hosted a [http://spring.parkinsons.org.uk/content/blogcategory/90/349/ conference] on the effect of exercise on Parkinson’s. [//m.houseofhawgs.com/User:Bhanu_Ramaswamy Bhanu Ramaswamy] was part of the organizing committee with her AGILE / ACPIN Parkinson’s Project Officer hat on, alongside Vicki Goodwin, who was also invited to speak on her research. The conference explored known aspects plus issues yet to be discovered about the benefits of exercise for people with Parkinson's. Contributions were from invited participants from across the world in the hope of enabling proposals for new research collaboration to promote exercise as an essential component of therapy for Parkinson's. [http://spring.parkinsons.org.uk/content/blogcategory/90/349/ General conference information can be accessed through the website] Below are videos of the two keynote presentations from the conference: {| width="400" cellspacing="1" cellpadding="1" border="0" align="center" |- | {{#ev:vimeo|8149682|350}}Professor Alice Nieuwboer c/o SPRING (Parkinson's UK). Exercise for Parkinson’s disease: the evidence under scrutiny. Available from: https://vimeo.com/8149682 [last accessed 29/09/16] | {{#ev:vimeo|8150672|350}}Professor Michael Zigmond c/o SPRING (Parkinson's UK). Exercise and Parkinson’s disease: evidence for efficacy from cellular and animal studies. Available from: https://vimeo.com/8150672 [last accessed 29/09/16] |}